top of page

1

SMA TYPE 1

>190

Thousand euros is the current state of the donations! Waw!

18

months, is the expected lifetime with SMA Type 1 without treatment

1047

Friends of Victor

What is 

SMA Type 1?

Spinal Muscular Atrophy (SMA) is the collective name for a group of neuromuscular disorders that lead to the malfunctioning of muscles.

Who is Victor?

Victor is our son & third child. At the age of 3.5 months he was diagnosed with SMA Type 1. Our world collapsed for a moment.

Become a friend of Victor

Would you like to stay up to date on our actions in 2020? Register here and we will keep you informed! 

Actions
2020

On our action page we will post all new actions that are being set up. 

Give Victor

#Victorpower

Donate financial, moral or physical power to Victor #Victorkracht 

NEWS & UPDATES.

No posts published in this language yet
Once posts are published, you’ll see them here.
Contact Us
Pers

BECOME A FRIEND OF VICTOR

Register here to stay informed

Happy to have you onboard! Victor just send you an email!

Contact us

Would you like to contact us to launch an action? Please leave your contact data below with your message to us. 

Thank you in advance! 

Thank you for your message! We will contact you as soon as possible!

EMAIL

victor@victorkracht.be

SOCIALS

  • Facebook
  • Instagram

DONATIONS

We are grateful for any donation, no matter how small. 

You can make a donation by bank transfer to
IBAN: BE24 0689 3697 2638 - BIC: GKCCBEBB

PRESS

The family wishes to focus all their attention and energy on the care for Victor and appreciates the restraint and discretion of journalists. Therefore please do not contact the family directly.

​

Questions can be directed to frederik.anseel@ugent.be or +61 482 83 25 26.


Please do not reproduce images from this website. High-res images are available in the press folder thanks to photographer Siska Vandecasteele. Please contact hello@siskavandecasteele.be if you would like to use these images.

bottom of page